Getting support with advanced prostate cancer

Finding out you have advanced prostate cancer can be profoundly disorienting. You may feel alone. You may not know where to turn for support.
Even if it feels like it at times, you don’t have to face this diagnosis on your own. There is support and guidance available, you just need to know what steps to take.

What can
you do now?

Build your prostate cancer support team

Living with a cancer diagnosis is not something you have to face alone. Lean on the community around you to take some of the stress of advanced prostate cancer off your mind. You’ll not only feel better, but the people that care about you will get the chance to be there when you need them most.

Share your diagnosis with your partner, family and friends

Being open with people you trust can lighten the load on your shoulders. Don’t be ashamed or afraid to talk through what’s bothering you. Are you worried about life expectancy with prostate cancer? Quality of life? How treatment might affect you? Or just generally what comes next? Your support system wants to help you get through it.

Consider a prostate cancer registry

In addition to clinical trials, many men choose to join a prostate cancer registry. A registry collects information on your cancer type, any treatments you’ve had, side effects, family history, overall quality of life and more. Doctors and researchers use this knowledge to work towards better care and treatments – and to improve quality of life for all men with prostate cancer.

The

is for men with advanced prostate cancer - visit to learn more and explore a location near you.

Who can help you get through advanced prostate cancer?

Your doctor or care team

Talk openly to your doctor, nurse, or someone else you trust in your care team. They can help you understand your diagnosis, your prognosis (the likely outcome of your treatment),

and potential side effects. They can also listen to your concerns and put you in touch with other people who can help.

Trained counsellors

Counsellors are trained to listen and can help you to find your own ways to deal with things. Many hospitals have counsellors or psychologists who specialise in helping people with cancer — ask your team at the hospital if this is available or if they know of services in the community you can access at low or no cost to you. Your GP or family doctor may also be able to refer you to a counsellor, or you can seek out a private counsellor yourself.

To find a counsellor near you, visit the

website.

Cancer support groups

Talking to other men with advanced prostate cancer can be a helpful way to connect with people who understand what you’re going through. Talk to your doctor for recommendations on any good local groups, or check online for ones that interest you.

Spiritual counsellors

Plenty of men find that talking with a spiritual leader or counsellor can be useful during this time. It may also help to visit places that make you feel calm, at peace and grounded, like a lake or somewhere out in nature.

It's OK to reach out

Remember, there is support available to help you make decisions and process all the feelings and questions you have. Never hesitate to reach out for help, and don’t be ashamed to let people know how you’re doing.

What's next?

Now that you've read up on Getting support with advanced prostate cancer, here are some related articles to explore as you continue to build your knowledge and understanding of this topic.
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